In the efforts of moving forward, we are waiting to hopefully be approved for some sort of home makeover to better suit Tanner's needs and we have scheduled him for VNS surgery, November 8th. We have tried a ton of medications, including many different CBD oils. The CBD does amazing things to his personality and happiness, but nothing has touched his seizures. And they have been really bad and out of control for awhile now. VNS (Vagus Nerve Stimulation) is designed to prevent seizures by sending mild pulses of electrical energy to the brain, via the vagus nerve. A device, similar to a pacemaker, is installed under the skin on the chest wall and a wire runs from it to the vagus nerve in the neck. Like anything else with CDKL5 kids, this surgery works for some and does not work for others. At this point, we have to keep moving forward and trying everything we can. So as difficult as it was, during Tanners first year of life, for us to mourn the loss of the child we thought we were having, I find that I am still doing that today. Please keep Tanner in your thoughts and prayers as he goes into surgery on the 8th, because above all else, I'll happily keep my "infant" baby boy, in any size and age body, as long as he's here on earth with me.