Have you ever wondered what it looks like to watch a child seize? Do you know that there are a ton of different types of seizures out there and they all look different? Those of you who know us or know Tanner but have never seen him have a seizure, have you ever wondered what it would be like to watch it happen throughout the day? and how often in a day? Are these even things you could realistically picture? What if it were your child? I have posted short videos below. Each video shows Tanner having a seizure. ALL DIFFERENT KINDS! Tanner has had, in his short 2 years of life, all of the following seizures: Myoclonics, spasms, cluster of spasms, clonic, tonic, partial, tonic clonic, absent and even what we call "seizure smiles". Watch the videos below and imagine it was your child. What would you do to help? None of us can control these or wave a magic wand to make them go away. Brian and I are doing everything in our power to make the right choices to help Tanner, but that's not enough. What if I told you there was a medicine out there that has been proven, in mouse models, to restore memory performance. Another words, gave tanner the ability to roll again since he has regressed and forgotten how. What if it proved to have long term impact on neurological survival and cognitive function? What if Tanner was able to take a medicine that helped him develop! Would you help us get that medicine? If your child were the ones in the video, does this sound like something you'd work hard at getting? That is 1 example of what the money donated to the IFCR (International Foundation for CDKL5 Research) is going towards. YOU CAN HELP! Come to our event Toasting Tanner on August 27th and celebrate the fact that these CDKL5 children are gifts from God. They are more special than we are. Tanner is still here and thriving and as happy as he can be and we want to celebrate him! Donate, using this link www.TannersJourney.com/events and your money WILL HELP! I can't continue to watch Tanner have these types of seizures and more, EVERY, SINGLE, DAY. Help us and give back to a worthy cause that doesn't get the recognition it needs, like other diseases and disorders do. Do not forget about the rare. Do not forget about the unique. Do not forget about Tanner.
https://youtu.be/kO-8Qa1Np6c
https://youtu.be/t0rWdIqSNxQ
https://youtu.be/dkap95Y9jqs
https://youtu.be/uc0KU8rH2Uw
https://youtu.be/kO-8Qa1Np6c
https://youtu.be/t0rWdIqSNxQ
https://youtu.be/dkap95Y9jqs
https://youtu.be/uc0KU8rH2Uw